Stories

Amanda & Jeremy

I am stronger because of my son

I find myself around mile 30 of a 50-mile, seven-night trek on the Jon Muir trail in the high Sierra Nevada mountains.

How did I get here?

I’m the model of a modern, domesticated husband and father. Admittedly, groomed for the finer and simpler things of life. Nevertheless, here I am.

Today, I’m mentally broken, dodging mosquitoes and longing for home. “Only” 20 more miles. “Only” two more nights. I miss my family terribly. I want my bed and a shower. An egg sandwich with coffee sounds delightful.

“But the only way home is the same way I got here—one step at a time.”

As I surrender my thoughts to the reality that there is no quick or easy way home, I can’t help but think about my son’s journey with spinal muscular atrophy (SMA). Every day, I watch my son tackle simple living tasks as if he were scaling a mountain. He has no easy way in this life; yet, he tackles every challenge without hesitation, taking one step at a time.

I’ve wanted to cry since the start of my hiking trip from mental fatigue and physical exhaustion, but tonight the tears finally roll down my face.

“Each tear confesses that what I have previously defined to be difficult as a 21st century man does not compare to what I am experiencing as I scale this earth and it certainly doesn’t compare to the challenges my son faces.”

As I reflect on my son’s steadfast and hard-earned strength, I am able to conjure the courage and perseverance to overcome my newfound brokenness. I can wipe away my tears and push on, knowing I am stronger because of my son.