Real Talk

Real Talk

Sometimes a few key words can become powerful inspirations. Here, members of the community share some of their own personal mantras that help them live with SMA their way.


Check out the events section to learn more about our Real Talk panels where the SMA My Way Contributors come together to discuss topics important to the SMA community.

I am determined. I am strong. I am resourceful.

Kristen, living with SMA

You can't please everyone

James, living with SMA

My life is right now, and I keep my attention on the present moment

Jasmine, living with SMA

Be the person you want to be friends with

Tabi, living with SMA

Focus on what you can control

Brianna, living with SMA

Never give up

Zarek, living with SMA, and Zack, brother of Zarek

My passion pushes me into action

Amber-Joi, parent of daughter with SMA

Find joy in the little things

Brianna, living with SMA

I am enough

Amber-Joi, parent of daughter with SMA

It doesn't matter how you fall but how you get up

Zarek, living with SMA and Zack, brother of Zarek

Love others, no matter who you are

Kevan, living with SMA

No dream is too big

Megan, living with SMA

Smile daily

Zarek, living with SMA,
and Zack, brother of Zarek

Life is messy... and that’s the best part.

Alex, living with SMA

We love you more.

Zarek, living with SMA,
and Zack, brother of Zarek

Keep laughing!

Shane, living with SMA

You’re doing great!

Kevan, living with SMA

Moment by moment

Jeremy, parent of son with SMA

Plant the seeds of change

Alex, living with SMA

Best. Day. Ever.

Amanda, parent of son with SMA

It’s always an adventure

Brianna, living with SMA