Created together with
the community
SMA My Way is a collaboration to support all people impacted by SMA. Hear from fellow life travelers living with SMA, including authors, entrepreneurs, students, partners and more, and see how they're approaching life goals and celebrating individuality. You'll find practical tools and empowering connections to help you live your life, your way.
want to learn more about an SMA treatment option that might be right for you?
balancing a career
with the demands
of a rare disease
While it’s not always an easy decision, I will always prioritize balance. My body can only handle so much. I can’t do everything I put my mind to. Not with SMA. And that’s okay. Success is just as much about knowing when to give up, and trusting that something even better is on the horizon.
now streaming:
Most Likely Not To...
SMA takes center stage with a first-of-its kind musical
preparing for takeoff
When I hear the word “travel” my brain neurons fire with excitement, but they also fire with anxiousness. Traveling with a child that needs medical equipment can be grueling. Over the years, I’ve learned it doesn’t have to be taxing, if I’m prepared.
Created with the community, for the community
Words to inspire
"The scariest choices I’ve made
have often been the most fulfilling."
Joel, living with SMA
"You can't please everyone."
James, living with SMA
"Attitude of gratitude."
Amber-Joi, parent of a daughter with SMA
“If you don't ask, the answer will always be no.”
Sawsan, living with SMA
“We choose JOY.”
Amanda & Jeremy, parents of a son with SMA
“Find your own way to shine.”
Tabi, living with SMA
“Create the art you feel in your heart.”
Zarek, living with SMA and Zack, brother of Zarek
“Attitudes are contagious, make yours worth catching.”
Jasmine, living with SMA
“Brighten someone else's day.”
Shane, living with SMA
“It's okay to ask for help.”
Kristen, parent of a son with SMA
